Launching the TRPM3 Foundation

Hello and welcome! My name is Jared. I am the father of a 4 year old daughter who has been diagnosed with a TRPM3 disorder from a genetic mutation (NM_020952.4:c.2509G>A, NP_066003.3:p.(Val837Met)). In coming to grips with this diagnosis, my wife and I have connected with other patients and families via a facebook group. The next step in raising awareness for our rare disease is to form a 501(c)(3) non-profit. This blog will detail the process of creating a 501(c)(3), with the hopes that it helps others thinking about forming a non-profit for their rare disease.